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Chris & Joe, "As the parent of a son with Duchenne muscular dystrophy, you are faced with many challenges. One of the most overwhelming of these challenges is modifying your house to be handicapped accessible. The Wheeled Scotsman Foundation lent their assistance by putting me in touch with Adaptive Solutions, who reviewed my modification plan and offered expertise and advice on the modification of my home. It was a true comfort to know that there are people out there that are willing to help me along this very difficult road." Hello Chris, I wanted to thank you so much for helping us get the bed. The bed has already made life so much easier, for me and Mason. He’s really sick right now and being able to raise the head of the bed for his cough made such a difference last night. And changing him and dressing him is so much easier on my back with the height of the bed being raised. I really appreciate all your help, your foundation is amazing! Thanks again, Once again, I'd like to Thank you soooo much for what you have done for us!It has definitely made Amy's task of bathing much, much easier and more enjoyable!!!! Thank you! Hello! Hello :-) I'm hoping you might be a source of information for us because I feel like I keep hitting a brick wall. We have a son with cerebral palsy, who is now 15. We moved up to Perkasie, away from our families in the city, about eight years ago. Bobby was graduating from Easter Seals and the Bucks IU had a great physical support program in Quakertown. So, we moved to a rancher, which was very accommodating to us at the time. Bobby was small, his wheelchair was small, he was a lightweight....well, the fairy tale ends there. He's now about 5'6" and weighs 170 lbs. And our main problem is needing a roll-in shower in the bathroom for him, as well as changing our main doorway to the home to make it user friendly for Bobby. Currently, he is unable to get himself in or out of our home independently and absolutely cannot use the bathroom with any means of independence because it's not user friendly for him. Right now, either me or my husband have to physically lift him out of his chair and onto the toilet and/or shower bench. We had originally made wider doorways, but now it seems they're not even big enough. As you know, there is virtually no funding around and insurance won't pay for any type of home mods. We did take out a loan from PATF in order to purchase a van with a chair lift. My husband works full time, and I work two jobs to hopefully pay off this loan faster so we can turn around and perhaps borrow money again for whatever home mods we need. We also have an above-ground pool with no lift and my fear is this summer, Bobby won't be able to get in there until my husband gets home from work. Last year, my other two children helped getting Bobby in and out, but he's just gotten so big, I can't physically do it any more. He enjoys the freedom of the pool so much it's pretty upsetting to think he'll have to sit by and watch his brother and sister, while waiting patiently for dad to come home to get him in. Our church had offered several months ago to help, but as people always have good intentions, things never seem to pan out. So, now I'm starting to feel a little desperate because it's just getting so hard to care for him as he continues to grow. My husband initially saw your story in The Intelligencer and said why don't we check into it? So, any assistance you think your foundation could offer would, as I'm sure you know, would be so very much appreciated. We look forward to hearing from you. | |||||||||||
